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PARENTS/FAMILY MEMBERS



This is an exciting time in your young person's life; make the most of it by preparing yourself with knowledge and identifying necessary supports.

Most parents say they wish they started the transition planning process earlier. Educate and inform yourself. Ask other parents or family members, teacher or access the inter-net for information about transition. Find out what services are provided in your area. Visit them all and ask for information. You can invite them to attend your son or daughter's ndividual Transition Planning (ITP) meeting. Ask what skills and competencies your son or daughter will need to be successful so that you can be certain the need for intensive appropriate instruction in basic skills can be is incorporated into your son or daughter's Individual Education Plan (IEP).

As you think about each area that must be addressed in an ITP, think about what activities your son or daughter should participate in and what skills he or she will need to develop or improve to achieve his or her desired outcomes. Make sure that your son or daughter is exposed to many different kinds of environments and activities, and ask him or her what interests him or her most. Observe what he or she may have a talent for. And you can change and or revise your son or daughter’s the plan as time goes by so that it always reflects his or her growing and changing interests, and needs and desires.

But remember..."Parents are People First"! To read an essay about one person's personal journey as a parent of a child with a developmental disability, please click here. "Parents Are People First"

Promoting and fostering self-determination in a young person enhances their future successes. TAKE CHARGE and TAKE CHARGE FOR THE FUTURE, developed by Oregon Institute on Disability and Development, Oregon Health Sciences University Center on Self-Determination, gives Ten Steps to Self-determination in the Home:

  1. Walk the tightrope between protection and independence. Allow your son or daughter to explore his or her world. Although there are certainly limits to this, it is essential to start thinking about, and letting "go". It is never easy.
  2. Children need to learn that what they say or do is important and can have influence on others. This involves allowing risk taking and exploration. Encourage your child to ask questions and express opinions. Involvement in family discussion and decision-making sessions are one way of providing this opportunity to learn.
  3. Self-work and self-confidence are critical factors in the development of self-determination. Model your own sense of positive self-esteem to your child. Tell your child that he or she is important by spending time with them.
  4. Don’t run away from questions about difference related to your child’s disability. That doesn’t mean however that you should focus on the negative side of the condition. Stress that everyone is unique, encourage your child’s abilities and help him or her to accept unavoidable limitations.
  5. Recognize the process of reaching goals; don’t just emphasize the outcomes. Children need to learn to work towards goals. For the young adult, encourage skills like organization and goal setting by modeling these behaviors. Make lists or hang a marker board with a list that shows the daily schedule.
  6. Find lots of opportunities for your young adult to interact with different types of people. This will help your son or daughter experience that everyone is unique and different.
  7. Set realistic but ambitious expectations. The adage that our goals should extend just beyond our reach is true. Take an active role in your young adult’s educational experience and don’t expect that it should all happen at school.
  8. Allow your child to take responsibility for his/her own actions…successes and failures. Provide valid reasons for doing things, instead of “because I said so.” Providing explanations helps the child to internalize the process and make it his/her own.
  9. Don’t leave choice-making opportunities to chance. Take every opportunity to allow your child to make choices: what he/she wears, is served for dinner, or where the family goes on vacation. When offered choices, make sure the child’s selection is honored.
  10. If you have other children, spend time with them. Your son or daughter needs to learn that the world does not revolve around them. Provide honest and positive feedback, but focus on behaviors or tasks that need to be improved. Don’t give up.

RESOURCES


Advocacy Skills and the Social Security Administration
Virginia Commonwealth University's Benefits Assistance Resource Center fact sheet shares information about techniques to prevent overpayments or underpayments and to present advocacy strategies for a successful relationship with the Social Security Administration.

A Good Life
A Good Life
is a book that looks at wills and estate planning, supported decision-making, developing a circle of support and alternatives to legal guardianship for family members of individuals with disabilities.

AHEAD Association on Higher Education and Disability
AHEAD is the premiere professional association committed to full participation of persons with disabilities in postsecondary education

Alta California Regional Center (Alta)
Alta California Regional Center (Alta) is one of 21 Regional Centers in California through which people with mental retardation or other developmental disabilities and their families are helped to make use of essential public and private services to meet their unique needs.

American Academy of Child and Adolescent Psychiatry
The AACAP developed Facts for Families to provide concise and up-to-date information on issues that affect children, teenagers, and their families.

Americas Promise
To mobilize people from every sector of American life to build the character and competence of our nations youth by fulfilling Five Promises for young people.

Annie E. Casey Foundation
Since 1948, the Annie E. Casey Foundation (AECF) has worked to build better futures for disadvantaged children and their families in the United States. The primary mission of the Foundation is to foster public policies, human service reforms, and community supports that more effectively meet the needs of today's vulnerable children and families. An Essay: Moving Youth From Risk to Opportunity

Ask ABLE
Ask ABLE is a professional service designed to assist faculty, staff, parents, service providers and students with disability related issues that arise. Experts provide educated, current and personalized answers to users questions within approximately two business days, to improve the educational outcomes of individuals with disabilities.

Augmentative Communication News (ACN) and Alternatively Speaking (AS)

Best Buddies
The mission of Best Buddies is to enhance the lives of people with intellectual disabilities by providing opportunities for one-on-one friendships and integrated employment.

California Association of Family Empowerment Centers
Through the State Improvement Grant, the Department established the Family Participation Fund to provide financial assistance to families. The Fund assists families who do not have any other agency support, to become active members of decision-making committees, task forces and other policy-making bodies.

California's Budget Process

California Budget Project
Working to improve the economic and social well-being of low and middle income Californians through independent fiscal and policy analysis and public education.

California Department of Developmental Services
The California Department of Developmental Services (DDS) is the agency through which the State of California provides services and supports to children and adults with developmental disabilities. These disabilities include mental retardation, cerebral palsy, epilepsy, autism and related conditions.

California Department of Education

California Department of Education Special Education Division-Key Performance Indicators
KPI's are measurements relating to effective learning for students with disabilities enrolled in California public schools. The KPI's will be used in the Department's Quality Assurance Process to evaluate improved educational outcomes for students with disabilities while ensuring compliance with federal and state laws.

California Department of Education - Special Education Department
Informing and supporting parents, educators and other service providers on special education topics with a focus on research-based practices, legislation, technical support and current resources.

California State Council on Developmental Disabilities
The California State Council on Developmental Disabilities is a federally-funded independent state agency established in federal and state law to assist in planning, coordinating, monitoring and evaluating services for individuals with developmental disabilities and their families.

California Regional Centers
California's developmental disability community is served by 21 regional centers with more than 40 offices located throughout the state.

Career Kids
Career Kids offers a wide variety of guidance materials for grades K-12. You'll find videos, software, books, assessments and more. This website includes great research tools for students including a resume builder, career videos and detailed career information.

CareerOneStop
Access over 1 million jobs, get labor market trends and tips, post your resume for thousands of employers, and MUCH MORE.

Centers for Independent Living
Directory of Independent Living Centers throughout the United States.

Commission on Accreditation of Rehabilitation Facilities (CARF)
We are an independent, not-for-profit organization. That means our focus is on ensuring the services you use meet your needs for quality and the best possible outcomes. CARF reviews and grants accreditation services nationally and internationally on request of a facility or program. Our standards are rigorous, so those services that meet them are among the best available.

Conservatorship, Trust and Wills
A 40 page guide for families.

Department of Labor
We created this page to provide a shortcut to information and services the Department of Labor offers people with disabilities.

Department of Rehabilitation (DOR)
Assists Californians with disabilities obtain and retain employment and maximize their ability to live independently in their communities. Working with individuals of every type and category of disability, DOR provides vocational rehabilitation services to eligible Californians.

Developmental Disabilities Area Board III
Our mission is to expand the range of options and increase employment opportunities for persons with developmental disabilities, to enhance independence, productivity and inclusion in the community. Serving the counties of: Alpine, Colusa, El Dorado, Nevada, Placer, Sacramento, Sierra, Sutter, Yolo and Yuba.

Developmental Disabilities Health Info
The primary goal of this site is to improve the health of persons with developmental disabilities in California. It is designed to support persons with developmental disabilities and their families in making informed health care decisions.

Disability Benefits 101
Disability Benefits 101 (DB101) helps workers, job seekers, and service providers understand the connections between work and benefits.DB101 brings together rules for health coverage, benefit, and employment programs that people with disabilities use.

Eunice Kennedy Shriver
The Eunice Kennedy Shriver Center has been a pioneer in research, education, and service for people with developmental disabilities and their families for over three decades.

Grants for Individuals with Disabilities
Information regarding grants and scholarship opportunities for individuals with disabilities.

Inclusion
This web site is designed for general education teachers, special education teachers, parents, and school staff to help provide some answers about how inclusive education can be accomplished. Resources for making accommodations are included as well as links to other web sites and resource lists for learning more about inclusive education.

Institute for Community Inclusion
The Institute for Community Inclusion supports the rights of children and adults with disabilities to participate in all aspects of the community.

Internal Revenue Understanding Taxes
Understanding Taxes is an interactive, instructional tax program, developed by the IRS, to provide high schools, community colleges, and the general public with a technology-based instructional tool.

Internet Resources for Special Children
Web site dedicated to communication information relating to the needs of children with disabilities on a global basis.

Institute on Independent Living
The Institutes purpose is to promote the opportunities of persons with disabilities to gain more personal and political power, self-determination, full participation and equality through information, training materials, consultancy and technical assistance. The Institute works in cooperation with other organizations that support these aims at the local, national and international level, including self-help groups in developing countries.

Joni and Friends
The disability outreach of Joni Eareckson Tada. Founded in 1979, Joni and Friends a biblical attitude toward disabilities, both visible and invisible.

KSG
List of scholarships for people with disabilities.

LEAD Students of America
LEAD Students of America (LSA), also known as LEAD and Club LEAD, is an organization designed to educate and inform others about disabilities that impact learning, to educate ourselves about disabilities and how they impact our learning, to develop effective and skillful communication and self-advocacy skills, to stimulate a desire to render service, to promote leadership, and to develop character.

Learning Disabilities Collaborative Action Network LDCAN
A site for students, parents, teachers, community on issues that are important to students with disabilities that impact learning-- IEPs, Section 504, IDEA, 504 plans, ADA, transition, learning disabilities, ADHD, ADD, leadership, education, employment, executive function, assistive technology, self-advocacy, self-determination, transition, Autism spectrum, and more...

Locate Your Legislators
By entering a California zip code you will find what legislators represent your area.

Mapping-Your-Future
A national collaborative, public-service project of the financial aid industry - bringing together the expertise of the industry to provide free college, career, financial aid, and financial literacy services for students, families, and schools.

MATRIX Parent Network
Empowering families of children with special needs to successfully understand and access the systems that serve them.

M. I. N. D. Institute

UC Davis M.I.N.D. Institute offers families new hope in unraveling the mystery that has long surrounded autism and autism spectrum disorders, fragile X syndrome, and other developmental disorders.

National Alliance for the Mentally Ill
Training students to become self-advocates encourages youth with disabilities to assert themselves and speak out for the accommodations they need to become full participants in society.

National Center for Learning Disabilities
The National Center for Learning Disabilities (NCLD) works to ensure that the nation's 15 million children, adolescents and adults with learning disabilities have every opportunity to succeed in school, work and life.

National Coalition for Parent Involvement in Education (NCPIE)
At NCPIE, our mission is simple: to advocate the involvement of parents and families in their childrens education, and to foster relationships between home, school, and community to enhance the education of all our nations young people.

National Collaborative on Workforce and Disability (NCWD)
NCWD/Youth is your source for information about employment and youth with disabilities.

National Early Childhood TA Center
The National Early Childhood Technical Assistance Center supports the implementation of the early childhood provisions of the Individuals with Disabilities Education Act (IDEA). Our mission is to strengthen service systems to ensure that children with disabilities (birth through five) and their families receive and benefit from high quality, culturally appropriate, and family-centered supports and services.

National Information Center for Children and Youth with Disabilities
NICHCY is the national information center that provides information on disabilities and disability-related issues. Anyone can use our services—families, educators, administrators, journalists and students. Our special focus is children and youth (birth to age 22).

National Mentoring Network
Whether you are a young person looking for a mentor or a parent considering finding a mentor for your child, you have come to the right place.

National Parent Information Network (NPIN)
The mission of NPIN is to provide access to research-based information about the process of parenting, and about family involvement in education.

Network of Care
This comprehensive, Internet-based resource is for the elderly and people with disabilities, as well as their caregivers and service providers.

No Child Left Behind
It's a new era in education and we want you, as parents and community members, to be part of the transformation. Here on the official "No Child Left Behind" website you can find answers to your questions about the new education law signed by President Bush on January 8, 2002.

Occupational Outlook Handbook
The Occupational Outlook Handbook tells you about the training and education needed, earnings, expected job prospects, what workers do on the job and working conditions for hundreds of different types of jobs. In addition, the Handbook gives you job search tips, links to information about the job market in each State, and more.

O*NET Online
O*NET Online makes occupational information interactive and accessible. Search occupations by keyword or by listing your skills. Occupational information includes a summary of tasks and work activities, tool and technology used in the occupation, knowledge, skills and abilities needed, and much more. The website also includes information on job accommodations.

Office for Civil Rights
The Office for Civil Rights in the U.S. Department of Education provides information explaining the rights and responsibilities of students with disabilities who are preparing to attend postsecondary schools. This webpage also explains the obligation of postsecondary school to provide academic adjustments, including auxiliary aids and services, to ensure that the school does not discriminate on the basis of disability.

On-Campus Outreach
The purpose of On-Campus Outreach (OCO) is to provide information and support to programs and personnel that provide services to public school students ages 18-21 with significant disabilities in post-secondary settings such as colleges, universities, or other community locations.

Parent Advocacy Coalition for Educational Rights (PACER)
The mission of PACER Center is to expand opportunities and enhance the quality of life of children and young adults with disabilities and their families, based on the concept of parents helping parents.

Parent Information and Training Centers
Parent centers in each state provide training and information to parents of infants, toddlers, school-aged children, and young adults with disabilities and the professionals who work with their families. This assistance helps parents participate more effectively with professionals in meeting the educational needs of children and youth with disabilities.

Parents Helping Parents (PHP)
Mission is to help children with special needs receive the resources, love, hope, respect, healthcare, education and other services they need to achieve their full potential by providing them with strong families and dedicated professionals to serve them.

Person Centered Planning Education Site
In this site you will find: an overview of the person-centered planning process; a self-study course covering the basic processes involved; a quiz section to help you focus on areas you may need to cover more thoroughly; a compendium of readings and activities for you to use on your own; various links and downloadable resources.

Placer County Office of Education Special Education
With a commitment to excellence, the Placer County Office of Education Special Education staff accepts the charge to promote cognitive, academic, social and physical development of students through specialized instructions and services, as well as, collaboration with families and the greater community.

ProjectTechLink
The purpose of the project is to disseminate information on successful best practices, curricula, and products that have been proven effective including students in social, vocational, and academic settings and activities.

Proyecto Visión
Proyecto Visión is a bilingual project to connect Latinos with disabilities to employment opportunities. The project offers bilingual technical assistance via a toll-free hotline, a bilingual Web site, newsletter and listserv, annual employment-centered conference/training, and leadership development activities.

Quality Mall
Quality Mall, a place where you can find lots of free information about person-centered supports for people with developmental disabilities. Each of the mall stores has departments you can look through to learn about positive practices that help people with developmental disabilities live, work and participate in our communities and improve the quality of their supports.

Selective Service
Almost all male U.S. citizens, and male aliens living in the U.S., who are 18 through 25, are required to register with Selective Service.

SSA Resources Toolkit
The tools that you need to find the information you seek. This section contains a broad range of resources that are relevant for various customers.

Student-led IEP Outreach Project
An outreach project that promotes student-led IEPs

Social Security Administration
Our Mission is to promote the employment of Social Security beneficiaries with disabilities.

Substance Abuse and Mental Health Services Administration (SAMHSA)
SAMHSA is the Federal agency charged with improving the quality and availability of prevention, treatment, and rehabilitative services in order to reduce illness, death, disability, and cost to society resulting from substance abuse and mental illnesses.

Teen Workers
Teen Workers is the premier site for teen worker safety and health information provided by the Occupational Safety and Health Administration (OSHA). The site offers information for teen workers, educators, parents, and employers.

The Arc
The Arc of the United States works to include all children and adults with cognitive, intellectual, and developmental disabilities in every community. The Family Future Planning Handbook

Think College
Youth with intellectual disabilities have not had many chances to go to college. This is changing as individuals across the country begin to create opportunities for these youth to reap the benefits of postsecondary education. This website will provide information and links to anyone interested in finding out more about the possibilities.

Through the Looking Glass (TLG)
A nationally recognized center that has pioneered research, training, and services for families in which a child, parent or grandparent has a disability or medical issue.

Transition Coalition
The mission of the Transition Coalition is to maximize professional development in secondary school reform and transition at the national, state and local levels. The Coalition supports best practices and creates professional development forums using face-to-face and online training and technical assistance.

Transition Planning for Adolescents
This booklet has been developed for families to help you prepare with your teen for his/her adulthood.

Understanding Taxes
Understanding Taxes is an interactive, instructional tax program, developed by the IRS, to provide high schools, community colleges, and the general public with a technology-based instructional tool.

Vocational and Educational Services for Individuals with Disabilities (VESID)
VESID works with students, families and school districts to coordinate appropriate services for students with disabilities who are leaving secondary education and entering adult vocational rehabilitation and related services.

What You Need To Know About
12 things high school students with ADD/ADHD would like their teachers to know.

Work Incentive Transition Network (WITN)
The purpose of this Network is to increase educators, family members, transition age students, and advocates' awareness of Social Security Work Incentives for school-aged youth with disabilities.

WorkSupport.Com
The purpose of this center is to identify factors that enhance or inhibit businesses from tapping into a pool of potential employees. Let us be your gateway to information, resources, and services regarding the employment of people with disabilities.

Wrightslaw
Parents, advocates, educators, and attorneys come to Wrightslaw for accurate, up-to-date information about special education law and advocacy for children with disabilities.

Youth At Work
This website is designed to teach you about some of your rights and responsibilities as an employee. The EEOC's goal is to eliminate illegal discrimination from the workplace for all workers.

YouthRules!
The YouthRules! web page and activities will educate teens, parents, educators, employers and the public on Federal and State rules regarding young workers – the hours youth can work, the jobs youth can do.